My Retina Tracker® Panel
A comprehensive 110-gene panel designed to identify pathogenic variants associated with inherited retinal degenerations and related retinal dystrophies.
Accessed through the My Retina Tracker® Sponsored Testing Program•Sponsored by Foundation Fighting Blindness•Performed by Prevention Genetics
Designed to help patients understand the purpose of testing and what to expect.
For patients
What this test and program do
This program provides no-cost genetic testing for inherited retinal diseases (IRDs) using a comprehensive 110-gene panel. Testing can help determine whether your vision changes are caused by a genetic condition and may support future care planning. Eligible patients can enroll through their provider and complete the required consent forms to participate.
Who this may help
Could this be right for you or your family?
- Must reside in the United States or a U.S. territory.
- Must have a clinically confirmed inherited retinal disease (IRD) included in the program.
- Must not have a first-degree relative previously tested through the Program.
- Must not have had 32+ gene IRD panel testing, whole exome, or whole genome sequencing within the last 5 years.
- Must not have a prior IRD-related molecular diagnosis from any genetic test.
- Must be willing to join the My Retina Tracker Registry and share results with the registry.
- Note: Individuals with a biological relative who received a positive or indeterminate Program result may qualify for familial variant testing at no cost.
What to expect
How the process works
- 1
Review Program Details
Your provider will share information about the Program along with the study flyer and FAQ so you can decide if you want to move forward.
- 2
Complete the Consent Forms
If you choose to participate, use the DocuSign link from the Foundation Fighting Blindness to complete the consent forms and HIPAA release.
- 3
Notify Your Provider
After submitting your electronic forms, your provider will receive a copy of your executed HIPAA release, which is required for ordering your test.
- 4
Provider Submits Test Order
Your provider will complete the Program’s test requisition form, provide your clinical details, and indicate their genetic counseling preference.
- 5
Provide a Sample
Your sample may be collected in clinic or through a kit mailed to your home. All specimen containers must be labeled with at least two identifiers.
- 6
Lab Processes Your Test
PreventionGenetics will process your sample once received. Specimens are accepted Monday–Saturday; holiday schedules are posted in advance.
- 7
Receive Your Results
Results are typically available in about 21 days and will be reviewed with you by your provider or by a genetic counselor at InformedDNA.
Cost & coverage
Understanding potential costs
If you qualify for this program, the sponsor works with the laboratory to help make testing more affordable. Many patients pay little or no out-of-pocket cost. Your exact cost will depend on your insurance coverage and the specific criteria of the program, and the lab can explain what to expect before your sample is processed.
Quality & privacy
How your sample and information are handled
Testing is performed by Prevention Genetics, a CLIA-certified laboratory (CLIA 52D2065132) and College of American Pathologists (CAP) certified laboratory (CAP 7185561). Your sample is processed using validated methods and quality controls to support reliable genetic results.
Your health information is handled under privacy and security practices that are intended to align with applicable regulations. For program- and lab-specific details, review the privacy information provided by the laboratory and sponsor.
FAQ
Common questions about this program
What is the My Retina Tracker Program?
The Program provides no-cost genetic testing for inherited retinal diseases (IRDs) using a comprehensive 110-gene panel. Testing helps identify the genetic cause of vision changes and supports long-term care planning.
Who qualifies for testing?
You must live in the U.S. or a U.S. territory, have a clinically confirmed IRD, have no first-degree relatives previously tested in the Program, and must not have had prior large-panel IRD testing, exome sequencing, genome sequencing, or a prior IRD molecular diagnosis. You must also agree to join the My Retina Tracker Registry.
How do I enroll?
Your provider must first apply to the Program. After your provider submits your information through the Program webform, you’ll receive an email with enrollment materials and DocuSign links to complete required consent forms.
What forms do I need to complete?
You must complete the study consent forms, HIPAA release, and the InformedDNA Consent for Services. These forms are provided to you electronically through DocuSign.
Where is my sample collected?
Your provider may collect your sample in clinic or request a home collection kit. Specimens must be labeled with at least two identifiers and are accepted Monday–Saturday.
How long do results take?
Most results are available about 21 days after PreventionGenetics receives your sample and completed paperwork.
Will I receive genetic counseling?
Yes. After your results are ready, you will either review them with your provider or with a genetic counselor at InformedDNA, depending on the option selected by your provider on the test requisition form.
Do I need to join the registry?
Yes. Participation requires enrollment in the My Retina Tracker Registry and sharing of your test results with the registry.
Questions to ask your doctor about My Retina Tracker® Panel
- Do you think this test is appropriate for me based on my symptoms and history?
- How could the results of this test change my diagnosis or treatment plan?
- What are the potential limitations of this test that I should understand?
- Should any of my family members also be tested based on my results?
- How will we follow up after the results are available?
Notes
See an issue with this program?